2026 Annual Conference
Education, Resources, and Support for Patients and Caregivers
We want our conference to be accessible to everyone in the rare disease community. Patients and caregivers who may need financial assistance with registration are invited to apply for a scholarship to attend our 2026 Annual Conference at no cost.
We encourage you to apply—we’d love to have you join us!
Explore the 2026 Conference Agenda
This year’s Advancing Rare Together: Education, Empowerment & Connection conference is designed to be more than a day of presentations—it’s a day to learn, connect, share, and take action.
Throughout the day, attendees will hear from featured speakers and members of the rare disease community, participate in interactive discussions, explore resources and support services, and make meaningful connections with patients, caregivers, advocates, professionals, and community organizations. The agenda includes our Community Voices Panel, Rare Exploration Experience, Solutions in Action roundtable discussions, networking opportunities, featured speakers, and more.
Whether you’re navigating a rare disease yourself, supporting someone you love, working within the rare disease community, or simply looking to learn more, there will be opportunities throughout the day to find information, build connections, and leave with practical resources you can use.
Join us Saturday, October 17, 2026, from 10:00 AM–3:00 PM in Attleboro, Massachusetts.
Thank you to our sponsors!
Platinum
Silver
Bronze
See past events here
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November 2025
Empowering Rare Lives
Advocacy, Resilience, and Readiness for the Rare Journey
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June 2025
Empowering Rare Lives
Advocacy, Resilience, and Readiness for the Rare Journey
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2024
Rare Together
Uniting For Progress
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2023
Power of Community
Why Attend?
Gain valuable insights through interactive workshops and expert-led discussions.
Master the organization of critical medical information for improved care.
Develop key strategies for emergency preparedness and homecare advocacy.
Expand your network by connecting with fellow attendees, exhibitors, and industry professionals.
Make an impact by learning how to influence rare disease policies through active engagement.
Your support helps makes these conferences possible.
Become a Sponsor!
Be part of the movement.
Connect with the Community
Exhibit and engage with patients, caregivers, medical professionals, and advocates.
Expand Your Reach
Gain valuable exposure and build meaningful relationships with a highly engaged audience.
Maximize Your Brand Visibility
Get featured in brochures, goody bags, and digital promotions before, during, and after the event!
For more information or sponsorship inquiries, contact Nicole White at Nicole@rarenewengland.org.