Annual Conference
Education, Resources, and Support for Patients and Caregivers
We want our conference to be accessible to everyone in the rare disease community. Patients and caregivers who may need financial assistance with registration are invited to apply for a scholarship to attend our 2026 Annual Conference at no cost.
We encourage you to apply—we’d love to have you join us!
See past events here
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November 2025
Empowering Rare Lives
Advocacy, Resilience, and Readiness for the Rare Journey
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June 2025
Empowering Rare Lives
Advocacy, Resilience, and Readiness for the Rare Journey
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2024
Rare Together
Uniting For Progress
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2023
Power of Community
Why Attend?
Gain valuable insights through interactive workshops and expert-led discussions.
Master the organization of critical medical information for improved care.
Develop key strategies for emergency preparedness and homecare advocacy.
Expand your network by connecting with fellow attendees, exhibitors, and industry professionals.
Make an impact by learning how to influence rare disease policies through active engagement.
Your support helps makes these conferences possible.
Become a Sponsor!
Be part of the movement.
Connect with the Community
Exhibit and engage with patients, caregivers, medical professionals, and advocates.
Expand Your Reach
Gain valuable exposure and build meaningful relationships with a highly engaged audience.
Maximize Your Brand Visibility
Get featured in brochures, goody bags, and digital promotions before, during, and after the event!
For more information or sponsorship inquiries, contact Nicole White at Nicole@rarenewengland.org.