Annual Conference

Education, Resources, and Support for Patients and Caregivers

See past events here

  • November 2025

    Empowering Rare Lives

    Advocacy, Resilience, and Readiness for the Rare Journey

  • June 2025

    Empowering Rare Lives

    Advocacy, Resilience, and Readiness for the Rare Journey

  • 2024

    Rare Together

    Uniting For Progress

  • 2023

    Power of Community

Why Attend?

Gain valuable insights through interactive workshops and expert-led discussions.
Master the organization of critical medical information for improved care.
Develop key strategies for emergency preparedness and homecare advocacy.
Expand your network by connecting with fellow attendees, exhibitors, and industry professionals.
Make an impact by learning how to influence rare disease policies through active engagement.

Your support helps makes these conferences possible.

Be part of the solution! →