Annual Conference

Education, Resources, and Support for Patients and Caregivers

  • June 2025

    Empowering Rare Lives

    Advocacy, Resilience, and Readiness for the Rare Journey

    Learn

  • November 2025

    Empowering Rare Lives

    Advocacy, Resilience, and Readiness for the Rare Journey

    Learn More

  • 2024

    Rare Together

    Uniting For Progress

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  • 2023

    Power of Community

    Learn More

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