Rare Disease Day Speaker Series

2019

These sessions provide the medical community the chance to see patients with disorders they might not otherwise see. This opportunity also makes it more likely that they will recognize such patients in the future.

Meet Our Speakers

Mark Korson, MD

RNE Board Member

Dr. Amel Karaa

Medical Director of the Cerebrovascular Disease and Stroke Program, Dartmouth-Hitchcock Medical Center

Institutions

  • Brandeis University Genetic Counseling Program (Acute Intermittent Porphyria)

  • Tufts University School of Medicine (Fabry Disease)

  • Yale-New Haven Medical Center (Pompe Disease)

  • University of New England (Metabolism Clinic)

  • Rhode Island Hospital (Acute Intermittent Porphyria)

  • Dartmouth-Hitchcock Medical Center (Very long-chain acyl CoA dehydrogenase deficiency)

  • Boston University School of Medicine Genetic Counseling Program (Barth Syndrome)

  • University of Vermont Medical Center (Barth Syndrome)

  • Bay Path University Genetics Counseling Program (Tango II Disease)

Thank you to our sponsors!

Thank you New England Regional Genetics Network for supporting the Rare Disease Day Speaker Series!