​Disclaimer: The information on this website is not intended to diagnose or treat any condition. Information should be regarded as general guidance only.  RNE shall not be liable for any action taken as a result of information taken from this site. RNE shall not be responsible for any information contained on sites linked to RNE's pages. Patients should consult their doctors before starting, stopping, or changing any medical treatments.


RNE founder, Julie Gortze sharing about RNE's mission on Mansfield Cable Station. Click HERE to hear more!
For the latest RNE updates, join our mailing list by contacting us at info@rarenewengland.org!
Support legislation to assist the rare disease community!

MA State Representative Paul Heroux has been championing HB3714, An Act to Create an Advisory Council since 2015.

Please visit our legislation page to learn more about this bill, how you can help it become law, and about other legislative efforts with purpose of aiding the rare disease community!
Rare New England is organizing a fundraiser!

To find out more, and to register for our event, please visit 
our webpage by 
clicking here.
MA State Representative recently spoke to the RNE Volunteer Team about legislative efforts and how we can all help get a bill passed through Committees. For more information on legislation and the rare disease community, visit our 
Healthcare Legislation page. 
Welcome to Rare New England! 

We hope you enjoy your visit to our site and find what you are looking for. If you need more information, please contact us at Info@rarenewengland.org.