​Disclaimer: The information on this website is not intended to diagnose or treat any condition. Information should be regarded as general guidance only.  RNE shall not be liable for any action taken as a result of information taken from this site. RNE shall not be responsible for any information contained on sites linked to RNE's pages. Patients should consult their doctors before starting, stopping, or changing any medical treatments.


RNE founder, Julie Gortze sharing about RNE's mission on Mansfield Cable Station. Click HERE to hear more!
For the latest RNE updates, join our mailing list by contacting us at info@rarenewengland.org!
Support legislation to assist the rare disease community!

MA State Representative Paul Heroux has been championing HB3714, An Act to Create an Advisory Council since 2015.

Please visit our legislation page to learn more about this bill, how you can help it become law, and about other legislative efforts with purpose of aiding the rare disease community!
Rare New England is organizing a fundraiser!

To find out more, and to register for our event, please visit 
our webpage by 
clicking here.
MA State Representative recently spoke to the RNE Volunteer Team about legislative efforts and how we can all help get a bill passed through Committees. For more information on legislation and the rare disease community, visit our 
Healthcare Legislation page. 
Welcome to Rare New England! 

We hope you enjoy your visit to our site and find what you are looking for. If you need more information, please contact us at Info@rarenewengland.org.
Thanksgiving, Black Friday, Cyber Monday… The holiday season is upon us, and it’s so easy to get overwhelmed. But in this season of giving, you can keep it simple on Giving Tuesday with a gift that truly matters—a gift from the heart.

Giving Tuesday is held annually on the Tuesday after Thanksgiving. It’s a global movement to encourage philanthropy and celebrate generosity. More than 45,000 corporate and nonprofit organizations in over 71 countries have participated in this initiative, and you can too!

Rare New England (RNE) whose mission is to bring together New England patients and families touched by rare and complex disorders, offers educational opportunities and builds foundations for support and to improve patient quality of life.                                                                                                                                      RNE highlights regional medical and community resources for patients and providers, and connects patients to appropriate national support and advocacy groups.                                                                                                                                              RNE also hosts informational events for rare disease stakeholders that empowers them to make informed decisions that better meet patient’s needs.                       Finally, RNE strives to increase awareness that patients with rare and complex disorders live, work, attend school, and participate in communities across New England.

Your gift donation provides for RNE’S continued work in the Rare Disease Community.

85% of every dollar donated goes directly to:
Advocacy Services For Patient & Families                                                                  Education and training For Medical Provider’s and Caregivers Patient & Families Outreach to promote awareness of Rare Disease

Your dollars will help make a difference! 

Please consider helping RNE continue offering services to patients and families living with a rare disease by donating to RNE today by clicking below!

Thank you for supporting the rare disease community through RNE!