Disclaimer: The information on this website is not intended to diagnose or treat any condition. Information should be regarded as general guidance only. RNE shall not be liable for any action taken as a result of information taken from this site. RNE shall not be responsible for any information contained on sites linked to RNE's pages. Patients should consult their doctors before starting, stopping, or changing any medical treatments.
RNE founder, Julie Gortze sharing about RNE's mission on Mansfield Cable Station. Click HERE to hear more!
Support legislation to assist the rare disease community!
MA State Representative Paul Heroux has been championing HB3714, An Act to Create an Advisory Council since 2015.
Please visit our legislation page to learn more about this bill, how you can help it become law, and about other legislative efforts with purpose of aiding the rare disease community!
MA State Representative recently spoke to the RNE Volunteer Team about legislative efforts and how we can all help get a bill passed through Committees. For more information on legislation and the rare disease community, visit our
We hope you enjoy your visit to our site and find what you are looking for. If you need more information, please contact us at Info@rarenewengland.org.
2017 - RNE Year in Review
Would you like to help RNE raise funds to enable programs and services for the rare disease community? Contact us at Info@rarenewengland.org
The New England Regional Genetics Group conference is being held on Nov 29th and 30th in Portsmouth, NH! Lots of fabulous information about genetics will be disbursed by lots of experts! RNE Board Member, Dr. Mark Korson will be a presenter and share about RNE's initiative to increase the workforce in genetics.
RNE has began production of a cable show series about rare and complex diseases. This program will offer information, education and highlight resources available to all stakeholders living and working in the rare disease community.