Rare Disease Day 2019
RNE is gearing up to help spread awareness, provide education, and make connections that benefit the rare disease community and aligning with Rare Disease Day 2019.

More information about Rare Disease Day can be found here and here.

RNE is  organizing another year of "RNE Honors Rare Disease Day Speaker Series", will be participating on a panel at the rare disease day event organized by Massachusetts Biotechnology Council, and asking families to submit stories to be uploaded to our webpage, "Rare Share" that tell a story about living with rare and complex diseases.

Stay tuned for more info about events in the New England!.