Jessica Shriver, MA Theology, MS Bioethics is a patient advocate and bioethicist specializing in care and advocacy issues that impact rare disease patients and their families.
Jessica earned a B.A. in Biochemistry at Smith College in Massachusetts, and worked for three years in biomedical research, studying effects of exercise on human and mouse muscle reconstruction. Jessica attended seminary at Gordon-Conwell Theological Seminary in Hamilton-Wenham, Massachusetts where she received a Master of Arts in Theology. Jessica earned a Master of Science in Bioethics from Albany Medical College, where her research focused on false accusations of medical child abuse.
In addition to her work with RNE, Jessica works as a patient advocate consultant, and has worked with the national non-profit organization MitoAction in their Advocacy Task Force, and Grief Support group. Jessica also works with the Rhode Island-based Anglican Church of the Way, in their Special Needs Ministry. Her research interests include ethical issues in the Rare Diseases community, the ethics of pediatric medical decision-making, false medical child abuse accusations, and pediatric palliative and end-of-life care.
Jessica’s life was impacted by rare disease when her husband and two children were diagnosed with a combination of rare genetic disorders, and her oldest child died of progressive medical problems at age five.